The Global GIST Network is a directory of resources available to GIST patients and their families in their own countries and languages. The focus is to identify the support available in a given country or for a given language ranging from:
Liaison: A link to an individual GIST patient or caregiver who is available to help another.
Listserv: A link to a foreign language listserv where GIST patients and families can talk to one another in their own language.
Organization: A link to an organization for a given country or language.
Web Site: A link to a GIST organization’s Web Site
Organizations in the Global GIST Network agree to link all other member sites to their web pages, to share information about local resources, including clinical trials, and to support the access of GIST patients to treatment.
The Global GIST Network is coordinated by Gilles Frydman, President of ACOR (Association of Online Cancer Resources), Markus Wartenburg, Spokesperson for Das Lebenshaus (House of Life) and Norman Scherzer, Executive Director of the Life Raft Group. Additional coordinators may be added as we grow.
The Global GIST Network Web site and foreign language translations are managed by the Life Raft Group. Foreign language listservs are provided by ACOR. European outreach is coordinated by Das Lebenshaus.